Confidentiality and Privacy
Under Federal legislation, there is provision for a doctor to release medically significant information about a familial disorder to close relatives without the consent of the patient. This provision reflects changes to the Federal Privacy Act (2006). The purpose of this provision is to reduce the potential harm that could arise from relatives being unaware of their risk of developing a heritable preventable disorder. Please note that it is the patient’s doctor, not a laboratory (such as Sonic Genetics), who potentially has the authority to release information for this purpose.